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Click here to access the registry.
About the Registry
The Patient InSight™ Registry Program is an interactive online database that enables physicians to record individual Visudyne patient data while also offering them the opportunity to view and compare collective patient data. Divided into key sections and featuring a wide array of powerful navigational tools, the site offers physicians a new and valuable way to evaluate Visudyne treatment patterns and results, providing information on everything from patient visual acuity scores to mean improvement rates from past Visudyne clinical studies.
In keeping with Novartis policy, the registry strictly observes all confidentiality agreements between patient and physician. Patient
data are provided only in aggregate form and only to registered users. All physicians submitting their own patient data may only do so by first creating a confidential home page.
Upon entering the site, physicians have the option of either creating such a home page, wherein they can record and edit individual patient data over time, or access a collective patient-data page, wherein they can view aggregate data based on the findings of other physicians. Both pages are complementary in nature; each time a physician enters data into his or her home page, it is automatically compiled for further review and analysis by the collective page. Employing graphs and charts, the collective page takes the data and uses it, along with entries from other home pages, to represent overall treatment patterns and outcomes. As a result, retina specialists and other physicians can use both pages to share information about Visudyne and spot helpful similarities or differences in treatment results.
In addition, the registry allows physicians to:
- Receive automated monthly statistics via e-mail on patients treated, followed-up, and overdue for follow-up evaluation
- Find patient treatment histories and outcomes
- Post ideas and observations via related case-study boards
- E-mail either all or select physicians in the InSight system, informing them that a case has been posted and that feedback is requested
Among the questions the registry helps physicians answer are:
- How do patient outcomes in real clinical practices compare to the outcomes from the Treatment of Age-related Macular Degeneration with Photodynamic Therapy (TAP) clinical study?
- How does the average treatment rate in real clinical practice compare to the TAP trial treatment rate where treatment criteria were regimented by the clinical protocol?
- How many treatments are necessary to stabilize patients?
For more information about this program and how to become a member of the registry, please visit www.patientinsight.org.
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